I intend to introduce a resolution designating the month of July 2024 as “MECP2 Duplication Syndrome Awareness Month” in Pennsylvania.
MECP2 duplication syndrome is a neurodevelopmental disorder that occurs almost exclusively in boys and is usually caused by duplication of genetic material on a specific region of the X chromosome. Children with this condition can experience a wide range of symptoms including respiratory infections, seizures, and gastrointestinal manifestations.
MECP2 duplication syndrome was not formally recognized until 2005, but natural history studies are ongoing to better prepare for the start of clinical trials.   
Please join me in sponsoring this resolution to bring awareness to this rare disorder.