LAW WITHOUT
GOVERNOR'S CHAPTER
SIGNATURE
22
JUNE 2, 2021 RESOLVES
STATE OF MAINE
_____
IN THE YEAR OF OUR LORD
TWO THOUSAND TWENTY-ONE
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S.P. 216 - L.D. 529
Resolve, To Direct the Department of Health and Human Services To Review
the Needs of Persons with Low-incidence Health Conditions
Sec. 1. Department of Health and Human Services to review the needs of
persons with low-incidence health conditions. Resolved: That the Department of
Health and Human Services shall undertake a review of the needs of persons with low-
incidence health conditions. The review required by this section must:
1. Identify common low-incidence health conditions that occur in children, including,
but not limited to, cystic fibrosis, cerebral palsy, Lowe syndrome, muscular dystrophy,
spina bifida, cleft lip and cleft palate, chromosomal disorders such as Down syndrome and
neurological disorders;
2. Identify the conditions identified under subsection 1 that require services or supports
into adulthood and what the scope of the needs may be;
3. Identify the conditions identified under subsection 1 for which funds are currently
provided through the children with special health needs program within the Department of
Health and Human Services, Maine Center for Disease Control and Prevention, including,
for each condition, the source of the funding and the amount of expenditures;
4. Identify the conditions identified under subsection 1 for which funds are not
currently provided through the children with special health needs program within the
Department of Health and Human Services, Maine Center for Disease Control and
Prevention;
5. Describe the unmet needs of persons with each condition identified under subsection
1.
The department shall develop a plan to address the unmet needs described in subsection
5 and to improve the ability of the children with special health needs program within the
Department of Health and Human Services, Maine Center for Disease Control and
Prevention to meet those needs.
Sec. 2. Report. Resolved: That the Commissioner of Health and Human Services
shall present the findings of the review and recommendations of the department pursuant
to section 1 to the Joint Standing Committee on Health and Human Services no later than
Page 1 - 130LR1259(03)
January 15, 2022. The Joint Standing Committee on Health and Human Services is
authorized to report out legislation relating to the report to the Second Regular Session of
the 130th Legislature.
Page 2 - 130LR1259(03)