The proposed bill aims to establish the Genetic Information Privacy Act in West Virginia, which introduces a comprehensive framework for the collection, use, and disclosure of genetic data by entities. It mandates that entities provide clear consumer information regarding their practices, including obtaining express consent for the collection and use of genetic data. The bill outlines specific definitions related to genetic data, biological samples, and the roles of various parties involved, such as consumers, entities, and processors. It also sets forth exceptions for certain uses of genetic data, particularly in research contexts and by governmental agencies, while emphasizing the need for express consent in various scenarios.

Additionally, the bill grants enforcement authority to the Attorney General, who can initiate civil actions against violators and recover damages for consumers. It prohibits the disclosure of genetic data to health insurance providers, life insurance companies, or employers without the consumer's express consent. The legislation also includes provisions for the security and privacy of genetic data, requiring entities to develop security programs and allowing consumers to access, delete, or revoke consent regarding their genetic data. Overall, the bill seeks to enhance consumer protection and privacy concerning genetic information in West Virginia.

Statutes affected:
Introduced Version: 16-5EE-1, 16-5EE-2, 16-5EE-3, 16-5EE-4, 16-5EE-5, 16-5EE-6