The 2025 Assembly Resolution 12, introduced on February 6, 2026, by a group of Wisconsin representatives, aims to officially recognize February 28, 2026, as Rare Disease Day in the state. The resolution highlights the significance of rare diseases, which collectively affect approximately 25 to 30 million Americans, despite each individual disease impacting fewer than 200,000 people. It emphasizes the serious and debilitating nature of many rare diseases, the challenges faced by patients and families—including delays in diagnosis and access to treatment—and the ongoing need for public awareness and research funding.
The resolution also notes that while over 800 treatments have been approved for rare diseases, millions still lack effective therapies. It acknowledges that residents of Wisconsin are among those affected, as nearly one in ten Americans live with a rare disease. The observance of Rare Disease Day, organized by the National Organization for Rare Disorders (NORD), aims to raise awareness and support for those impacted by these conditions.