Senate Bill 570 establishes a statewide Parkinson's disease registry under the Department of Population Health Sciences at the University of Wisconsin-Madison. The bill mandates that healthcare providers report data on patients diagnosed with Parkinson's disease or related parkinsonisms to the registry, which will collect information on the incidence, prevalence, and outcomes associated with these conditions. If a patient opts out of participating in the registry, only the diagnosis will be reported. The bill also requires the creation of a public website to disseminate annual reports and relevant data about Parkinson's disease in Wisconsin.
Additionally, the bill includes provisions for confidentiality, ensuring that any identifying information about individuals reported to the registry is kept confidential through a coding system. It allows the University of Wisconsin-Madison to share data with other state registries, federal agencies, and researchers, provided that confidentiality agreements are in place. The bill also specifies that the Department of Health Services may assist in the establishment and maintenance of the registry, and it outlines the reporting requirements and the types of data to be collected.