The 2025 Assembly Resolution 3, introduced on February 3, 2025, by a group of Wisconsin representatives, aims to officially recognize February 28, 2025, as Rare Disease Day in the state. The resolution highlights the significance of rare diseases, noting that there are nearly 10,000 such conditions affecting fewer than 200,000 Americans each, collectively impacting approximately 25 to 30 million individuals nationwide. It emphasizes the serious nature of many rare diseases, the challenges faced by patients and families—including delays in diagnosis and limited access to treatments—and the ongoing need for public awareness and research funding.
The resolution also acknowledges that residents of Wisconsin are among those affected by rare diseases, with nearly one in ten Americans diagnosed with such conditions. It aligns with a nationwide observance organized by the National Organization for Rare Disorders (NORD) to raise awareness and support for those impacted by rare diseases. By designating this day, the Wisconsin Assembly aims to foster greater understanding and advocacy for individuals living with rare diseases and to encourage efforts to improve their access to care and treatment options.