2023 - 2024 LEGISLATURE
LRB-4334/1
JKS:skw
2023 SENATE JOINT RESOLUTION 68
September 12, 2023 - Introduced by Senator WANGGAARD, cosponsored by
Representative VOS. Referred to Committee on Senate Organization.
1 Relating to: proclaiming September 17, 2023, as Kleefstra Syndrome Awareness
2 Day in Wisconsin.
3 Whereas, Kleefstra syndrome is rare genetic disorder characterized by
4 intellectual disability and often accompanied by a spectrum of complex physical and
5 clinical features; and
6 Whereas, Kleefstra syndrome is primarily caused by a tiny missing piece from
7 the end of chromosome 9 but may also be caused by genetic mutation or intragenic
8 duplication; and
9 Whereas, Kleefstra syndrome presents as a wide range of symptoms and an
10 even wider range in the severity of those symptoms, due in part to the number of
11 damaged or deleted genes in the 9q34.3 region of chromosome 9; and
12 Whereas, most cases of Kleefstra syndrome are not inherited from either
13 parent, and only rarely have individuals with Kleefstra syndrome been known to
14 pass the disorder on to their children; and
 LRB-4334/1
2023 - 2024 Legislature -2- JKS:skw
1 Whereas, addressing the complex medical needs of people with Kleefstra
2 syndrome early in life is imperative to helping families successfully care for their
3 children who are affected by the syndrome; and
4 Whereas, the need for more education, awareness, and support for families
5 dealing with Kleefstra syndrome is essential; and
6 Whereas, Kleefstra Syndrome Awareness Day is observed on September 17
7 because the majority of members of this community have a deletion on chromosome
8 9 in the 9q34.3 region, and the ninth month of the year is September, and the 17th
9 letter of the alphabet is q; now, therefore, be it
10 Resolved by the senate, the assembly concurring, That the members of the
11 Wisconsin Legislature proclaim September 17, 2023, as Kleefstra Syndrome
12 Awareness Day in Wisconsin.
13 (END)