The resolution acknowledges the significant impact of rare diseases, which collectively affect millions of Americans, including approximately 750,000 residents of Washington state. It highlights the challenges faced by individuals and families dealing with these conditions, such as delays in diagnosis, difficulties in accessing medical expertise, and limited treatment options. Despite the approval of over 880 drugs for rare diseases by the FDA, many patients still lack effective therapies, and those with less well-known conditions often bear the burden of funding research and raising awareness.
In light of these challenges, the resolution commends the efforts to find cures for rare diseases and encourages all Washingtonians to support those affected and their families. It emphasizes the importance of compassionate care and scientific discovery in addressing the needs of individuals with rare diseases, while also recognizing the contributions of Washington's academic institutions and biotech companies in advancing research and treatment options.