The bill H.533 proposes to enhance Vermont's newborn screening program by requiring the Department of Health to amend its existing rules to include testing for congenital cytomegalovirus (cCMV). This amendment will ensure that expectant parents, hospitals, birthing centers, and healthcare providers receive comprehensive information about the diseases and conditions included in the newborn screening program. The information will cover various aspects, such as the incidence, transmission, associated birth defects, testing methods, preventative measures, and relevant resources related to each condition.
Additionally, the bill establishes the Congenital Cytomegalovirus Advisory Committee, which will advise the Department on matters related to cCMV. The committee will consist of various healthcare professionals and representatives, including a chair from the Department of Health, and will be responsible for recommending standards for screenings, facilitating communication between parents and healthcare providers, and proposing public education initiatives. The committee is required to submit an annual report with findings and recommendations for legislative action. The act is set to take effect on July 1, 2026.