The House Resolution from the State of Vermont urges all state agencies, departments, and offices to prioritize the protection of civil rights, medical confidentiality, and personal privacy for Vermonters diagnosed with autism. This call to action comes in response to the recent announcement by the Secretary of the U.S. Department of Health and Human Services regarding the establishment of a federal autism research database. The resolution emphasizes that autism is a neurological difference rather than a disease, and it highlights the importance of individuals with autism in contributing to the workforce and community.
The resolution expresses concerns about the potential misuse of sensitive health information that may arise from the new database, which will compile data from insurance claims, electronic medical records, and wearable devices. It references an Executive Order from the Governor of Illinois that mandates strict compliance with privacy protections for individuals with autism and calls for similar vigilance from Vermont officials. The resolution concludes by directing the Clerk of the House to send copies to relevant federal and state officials to ensure awareness and action regarding the protection of personal data related to autism.