The bill H.293 focuses on enhancing health equity data reporting and updating cancer and amyotrophic lateral sclerosis (ALS) registry disclosure requirements in Vermont. It amends 18 V.S.A. § 253 to require the Department of Health to analyze health equity data every three years, starting in 2028, instead of annually, and to report the findings to relevant legislative committees. The analysis will cover disparities based on various factors, including race, ethnicity, primary language, and socioeconomic status, and the data will be made publicly available in compliance with state and federal laws.

Additionally, the bill modifies the disclosure requirements for cancer and ALS registries under 18 V.S.A. §§ 155 and 174. It changes the language regarding the confidentiality agreements required before sharing data with researchers and other entities, specifying that the Commissioner must obtain "written assurances" that identifying information will be kept confidential as mandated by law. The bill also clarifies that researchers must provide evidence of approval from an institutional review board or privacy board, aligning with federal regulations. The act is set to take effect on July 1, 2025.

Statutes affected:
As Introduced: 18-253, 18-155, 18-174
As Passed By the House -- Official: 18-253, 18-155, 18-174
As Passed By the House -- Unofficial: 18-253, 18-155, 18-174