The bill establishes a Rare Disease Advisory Council within the Vermont Department of Health to address the needs of individuals living with rare diseases. The Council will consist of various members, including individuals with rare diseases, healthcare professionals, and representatives from relevant organizations. Its primary responsibilities include conducting public hearings to assess the needs of rare disease patients, providing testimony on legislation affecting this community, and developing policy recommendations to improve access to diagnostic services and treatment. The Council will also have the support of the Department of Health and will maintain a web page for transparency and communication.

Additionally, the bill mandates the Department of Health to collaborate with the University of Vermont Medical Center and other stakeholders to create resources for primary care providers regarding long COVID. By January 1, 2027, the Department is required to identify best practices and support services for long COVID patients, including peer and community-based programs. The bill also outlines a timeline for presenting recommendations on long-term disability supports for individuals experiencing long COVID. The act is set to take effect on July 1, 2026.