The bill H.46 proposes the establishment of the Rare Disease Advisory Council within the Vermont Department of Health. This council aims to provide guidance and recommendations regarding the needs of individuals living with rare diseases in Vermont. The council will consist of various members, including state commissioners, individuals living with rare diseases, caregivers, healthcare professionals, and representatives from relevant organizations. The council is tasked with conducting public hearings, providing testimony on legislation, consulting with experts, publishing resources, and reviewing the public health impact of rare diseases.

Additionally, the bill outlines the council's operational structure, including the appointment process for members, the requirement for annual reporting to legislative committees, and the provision for compensation and reimbursement for council members. The act is set to take effect on July 1, 2025.