The bill H.46 establishes the Rare Disease Advisory Council within the Vermont Department of Health to address the needs of individuals living with rare diseases. The Council will consist of various members, including individuals with rare diseases, their guardians, health professionals, and researchers, all appointed by the Commissioner of Health or relevant organizations. The Council's responsibilities include conducting public hearings to assess the needs of rare disease patients, providing testimony on legislation affecting this community, and developing policy recommendations to improve access to diagnostic services and treatment.

Additionally, the bill mandates the Department of Health to collaborate with the University of Vermont Medical Center and other stakeholders to create resources for primary care providers regarding long COVID by January 1, 2027. This includes identifying best practices and support services for patients experiencing long COVID. The Department is also required to present recommendations for long-term disability supports for individuals with long COVID to the relevant legislative committees by February 1, 2027. The act is set to take effect on July 1, 2026.