H.B. No. 107 establishes a sickle cell disease registry in Texas, adding Chapter 52B to Subtitle B, Title 2 of the Health and Safety Code. The bill mandates the Department of State Health Services to create and maintain this registry as a centralized repository for accurate and complete records of sickle cell disease cases. The registry will include data on cases occurring in the state and any additional information deemed necessary by the executive commissioner to assist in the treatment and cure of the disease. Health care facilities are required to provide relevant data to the department, and the executive commissioner is tasked with adopting rules to implement the chapter, including guidelines for data collection and confidentiality protections.

The bill also emphasizes the confidentiality of the information collected, stating that reports and records obtained under this chapter are not public information and are exempt from subpoena. Medical or epidemiological information may only be released for statistical purposes without identifying individuals, or with consent. The department is required to submit an annual report to the legislature on the information gathered, and the implementation of the provisions is contingent upon specific legislative appropriations. The act is set to take effect on September 1, 2025.

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