The bill establishes the Texas Rare Disease Advisory Council, which is tasked with advising the governor, state agencies, and private healthcare entities on strategies to improve health outcomes for individuals diagnosed with rare diseases. The council will consist of 23 members appointed by the governor, lieutenant governor, and speaker of the house, with specific representation from various healthcare and research sectors, including geneticists, physicians, and individuals affected by rare diseases. The council will meet regularly, develop policy recommendations, and provide annual reports on its activities and recommendations for legislative action.

Additionally, the bill outlines the council's structure, including the appointment process, member terms, and duties. It specifies that the council will provide administrative support and resources necessary for its operations. The initial appointments to the council are required to be made by December 1, 2025, with staggered terms for members, and the council is expected to conduct its first meeting by January 1, 2026, and submit its first report by September 1, 2026. The act will take effect on September 1, 2025.

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