The bill establishes the Texas Rare Disease Advisory Council, which is tasked with advising the legislature, governor, state agencies, and private entities on the needs of individuals with rare diseases in Texas. The council will consist of various members, including representatives from higher education institutions, state departments, healthcare professionals, and individuals affected by rare diseases. The council is required to conduct its member appointment process transparently and will meet at least quarterly, with an initial meeting scheduled by January 1, 2026.

Additionally, the council will develop policy recommendations to improve patient access to healthcare services related to rare diseases, make recommendations to state agencies and insurers regarding treatment provisions, and identify best practices for health equity and continuity of care. The council is also authorized to solicit funding through gifts, grants, and donations to support its operations. The bill includes provisions for the council to submit a biennial report on its activities and recommendations to the governor and relevant legislative committees. The act is set to take effect on September 1, 2025.

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