The bill establishes the Texas Rare Disease Advisory Council, which is tasked with advising the legislature, governor, state agencies, and private entities on the needs of individuals with rare diseases in Texas. The council will consist of various members, including representatives from higher education, state departments, healthcare professionals, and individuals affected by rare diseases. The bill outlines the appointment process for council members, which includes initial appointments by specific authorities and a transparent process for future vacancies. The council is also required to meet regularly, conduct public outreach, and submit biennial reports on its activities and recommendations.

Additionally, the bill includes provisions for the council's structure, such as the selection of a presiding officer and the terms of service for members. It emphasizes the importance of public engagement and the need for the council to consult with experts to develop policy recommendations aimed at improving access to healthcare for rare disease patients. The council will also be able to solicit funding through gifts and grants to support its operations. The act is set to take effect on September 1, 2025.

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