The bill establishes the Texas Rare Disease Advisory Council, which is tasked with advising the legislature, governor, state agencies, and private entities on the needs of individuals with rare diseases. The council will consist of various members, including representatives from higher education, state departments, healthcare professionals, and individuals affected by rare diseases. The council is required to conduct its member appointment process transparently and will serve staggered three-year terms, with specific provisions for initial appointments and the presiding officer. The council will also be responsible for developing policy recommendations, improving patient access to care, and identifying best practices for addressing health disparities.

Additionally, the advisory council is mandated to meet quarterly, with an initial meeting scheduled by January 1, 2026, and to provide public outreach through a dedicated website. The council will prepare a biennial report on its activities and recommendations, which will be made available for public comment before submission. The bill allows the council to solicit funding through gifts, grants, and donations to support its operations. The provisions of this act will take effect on September 1, 2025.

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