The bill, S.B. No. 820, proposes the establishment of a sickle cell disease registry in Texas, which will serve as a comprehensive repository for accurate and complete records of sickle cell disease cases. The new Chapter 52B added to the Health and Safety Code defines "health care facility" and mandates that these facilities provide necessary data regarding sickle cell disease cases to the department. The registry aims to aid in the treatment and potential cure of sickle cell disease by compiling relevant information and statistics, which will be accessible to medical professionals and the public.
Additionally, the bill outlines the powers of the department to implement the registry, including the ability to execute contracts, receive data, and publish studies derived from the collected information. It emphasizes the importance of protecting patient confidentiality in accordance with existing laws. The executive commissioner is tasked with adopting rules to ensure the effective implementation of the registry, and an annual report on the registry's findings will be submitted to the legislature. The act is set to take effect on September 1, 2025.
Statutes affected: Introduced: ()