The bill, H.B. No. 1884, proposes the establishment of a sickle cell disease registry in Texas, which will serve as a centralized repository for accurate and complete records of sickle cell disease cases. The new Chapter 52B of the Health and Safety Code outlines the responsibilities of the Department of Health, which includes maintaining the registry, collecting data from health care facilities, and ensuring the confidentiality of individuals diagnosed with sickle cell disease. The registry will contain records of sickle cell disease cases occurring in the state and any additional information deemed necessary by the executive commissioner to assist in the treatment and cure of the disease.

To facilitate the implementation of this registry, the bill grants the department the authority to execute contracts, receive data from health care facilities, and publish statistical studies based on the collected data. The executive commissioner is also tasked with adopting rules to ensure the registry's development aligns with federal and state laws regarding health information disclosure. An annual report on the information obtained from the registry will be submitted to the legislature, and the bill is set to take effect on September 1, 2025.

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