The bill proposes the establishment of a sickle cell disease registry in Texas, which will be managed by the Department of Health. It introduces Chapter 52B to the Health and Safety Code, defining "health care facility" and outlining the registry's purpose as a comprehensive repository for accurate records of sickle cell disease cases. The registry will include data on cases occurring within the state and any additional information deemed necessary by the executive commissioner to assist in the treatment and cure of the disease.

Furthermore, the bill mandates that health care facilities provide relevant data to the department, which will analyze and publish findings to benefit medical professionals and the public. The executive commissioner is tasked with adopting rules to ensure the registry's implementation, including guidelines for data collection and confidentiality protections in compliance with existing health information laws. The bill is set to take effect on September 1, 2025, and requires an annual report to the legislature on the information gathered through the registry.

Statutes affected:
Introduced: ()