Senate Joint Resolution 444, sponsored by Johnson, aims to designate the week of September 21-28, 2025, as "FTD Awareness Week" in Tennessee. This resolution highlights the significance of Frontotemporal Degeneration (FTD), a terminal and incurable neurodegenerative disease that primarily affects the frontal and temporal lobes of the brain. FTD leads to severe impairments in speech, personality, behavior, and motor skills, impacting over 60,000 individuals in the United States. The resolution emphasizes the need for increased awareness and understanding of FTD, which is often misdiagnosed and can significantly affect individuals in their prime working years.
The resolution also notes the challenges associated with diagnosing FTD, which can take an average of 3.6 years, and the average life expectancy following symptom onset ranges from seven to thirteen years. It points out that FTD represents a notable percentage of dementia cases, particularly among younger individuals, and imposes higher annual care costs compared to Alzheimer's disease. By commemorating FTD Awareness Week, the resolution seeks to educate the public about the disease's impact and the importance of supporting research and resources for those affected by FTD in Tennessee.