House Joint Resolution 120, sponsored by Powers, calls for the implementation of a voluntary reporting system for Charcot-Marie-Tooth Disease (CMT) in Tennessee. CMT is a prevalent inherited neurological disorder affecting approximately 2,800 individuals in the state. The resolution highlights that the Department of Health already has the infrastructure in place for voluntary reporting of various health conditions, meaning no additional state funding would be necessary to establish this system. By accurately tracking CMT cases, Tennessee could enhance its eligibility for federal research grants and improve healthcare resource allocation.
The resolution encourages the Department of Health to utilize existing electronic health record systems for the voluntary reporting of CMT cases and to provide annual progress reports to relevant legislative committees. Importantly, the resolution emphasizes that this initiative will not impose any new financial burdens on the state or healthcare providers, aiming to support better-targeted care for CMT patients in Tennessee.