House Joint Resolution 120, sponsored by Powers, advocates for the establishment of a voluntary reporting system for Charcot-Marie-Tooth Disease (CMT) in Tennessee. CMT is a prevalent inherited neurological disorder affecting approximately 2,800 individuals in the state. The resolution highlights that the Department of Health already has voluntary reporting systems in place for various health conditions, which means that implementing CMT reporting would not require additional state funding. The accurate collection of data on CMT patients is expected to enhance Tennessee's ability to secure federal research grants and improve specialized care for affected individuals.

The resolution encourages the Department of Health to utilize existing electronic health record systems for the voluntary reporting of CMT cases and to leverage current departmental resources for this initiative. Additionally, it calls for an annual report to be provided to relevant legislative committees on the progress of the reporting system. Importantly, the resolution emphasizes that this initiative should not impose any new financial obligations on the state, aligning with Tennessee's commitment to efficient healthcare resource allocation and improved care for patients with rare diseases.