The bill H. 5509, introduced in the South Carolina House of Representatives, aims to recognize Sam Stockton for his battle with Batten disease and to declare June 9, 2026, as "Batten Disease Awareness Day" in South Carolina. Batten disease, a rare genetic disorder, leads to severe neurological impairment and has a devastating impact on affected children, who typically have a life expectancy of only eight to twelve years. The resolution highlights the struggles faced by children like Sam, who requires life-sustaining treatment that is not a cure but offers hope.

The resolution emphasizes the importance of raising awareness about Batten disease and encourages South Carolinians to support research and funding efforts to combat this condition. It acknowledges the role of the Batten Disease Support, Research, and Advocacy (BDSRA) Foundation in promoting awareness and providing support for families affected by the disease. The resolution concludes with a commitment to present a copy of the resolution to Sam Stockton and his family, recognizing their challenges and the broader implications of Batten disease.