The bill, S. 659, is a Senate resolution recognizing May 2025 as "ALS Awareness Month" in South Carolina. It highlights the severity of amyotrophic lateral sclerosis (ALS), a progressive and fatal neurodegenerative disease that significantly impacts individuals' ability to perform basic functions such as walking, talking, and breathing. The resolution notes the alarming statistics surrounding ALS, including the frequency of new diagnoses and the average survival time post-diagnosis, as well as the increased risk for military veterans.
Furthermore, the resolution emphasizes the importance of access to new therapies, medical equipment, and communication technologies for those living with ALS. It acknowledges the critical role of clinical trials in developing new treatments and improving the quality of life for patients. The resolution also expresses support for the ALS Association, which funds extensive research and advocates for increased funding to combat the disease. By adopting this resolution, the South Carolina Senate aims to raise public awareness about ALS and show solidarity with affected individuals and their families.