The resolution recognizes June 19th as World Sickle Cell Awareness Day and supports the "Shine the Light" campaign to increase awareness about Sickle Cell Disease (SCD), an inherited blood disorder that affects millions worldwide, primarily those of African descent. In the United States, around 3,000 babies are born with SCD annually, and an estimated 100,000 Americans live with the disease. The resolution acknowledges the health disparities and barriers to care for individuals with SCD in Rhode Island, such as implicit bias, racism, inadequate insurance, and limited access to specialists, which lead to frequent hospitalizations, complications, early mortality, and a decreased quality of life.
The resolution calls for the commemoration of June 19, 2023, as World Sickle Cell Awareness Day in Rhode Island and urges healthcare providers, public health organizations, and community groups to raise awareness and support for SCD. It emphasizes the need for improved care and access to resources for individuals with SCD, including medical and psychosocial care, financial assistance, and education and job training programs. The resolution also directs the Secretary of State to send certified copies of the resolution to the Rhode Island Blood Center and the Sickle Cell Disease Association of America, Inc., to further support these initiatives.