Soon, I will be introducing a resolution designating June 23, 2026, as “Dravet Syndrome Awareness Day” in Pennsylvania to raise awareness of this rare and catastrophic form of epilepsy and to recognize the individuals and families affected by this life-altering condition.

Dravet syndrome is a severe developmental and epileptic encephalopathy that typically begins during infancy. Individuals living with Dravet syndrome experience frequent and prolonged seizures, developmental delays, cognitive and behavioral challenges, and an increased risk of premature death, including from Sudden Unexpected Death in Epilepsy (SUDEP). The condition is most commonly associated with a mutation of the SCN1A gene and affects approximately 1 in every 15,700 individuals.

Despite advances in treatment, there is currently no cure for Dravet syndrome. Families often face significant medical, emotional, and financial challenges as they navigate complex care needs and access to specialized treatments and services. Continued investment in research, public awareness, early diagnosis, and patient support remains critical to improving quality of life and outcomes for those affected.

June 23 is recognized internationally as Dravet Syndrome Awareness Day. Through this resolution, Pennsylvania can join the international community in helping to shine a light on this devastating disorder while demonstrating support for patients, caregivers, advocates, and researchers dedicated to advancing treatment and finding a cure.

Please join me in co-sponsoring this resolution to raise awareness of Dravet syndrome and support ongoing efforts in education, advocacy, research, and patient care.