Dravet syndrome is a genetic form of epilepsy that is characterized by temperature-sensitive seizures that usually begin when an infant is between four and twelve months of age. This condition affects approximately 20,000 people across the country, who have to go through an expensive series of tests for the condition to be diagnosed. One of those 20,000 people is a young child who lives in my district and experiences complex medical needs that require ongoing care and daily monitoring. Despite this, they are known for their empathy, joyful spirit, and ability to bring people together.
 
Tragically, this condition has a 15% - 20% mortality rate due to Sudden Unexpected Death in Epilepsy (SUDEP), prolonged seizures, seizure-related accidents, and infections. In addition to seizures, patients with Dravet syndrome may experience severe intellectual and developmental disabilities, motor and speech impairments, behavioral challenges, and sleep abnormalities.
 
To help raise awareness of this rare condition, I will be introducing a resolution designating June 23, 2026, as Dravet Syndrome Awareness Day.
 
I look forward to your support for this resolution in order to recognize the severity of this rare condition and to advocate for further research to be conducted to improve diagnosis and treatment options, with the hopes of someday finding a cure.