Prader‑Willi Syndrome (PWS) is a rare and complex genetic disorder affecting approximately 1 and 10,000 to 30,000 people worldwide. It is characterized by low muscle tone, developmental delays, endocrine abnormalities, behavioral challenges, and a chronic, life‑threatening inability to regulate hunger. Individuals with PWS require lifelong medical, nutritional, and behavioral support and their families shoulder extraordinary caregiving responsibilities.

Despite its severity, PWS remains widely misunderstood and underrecognized leading to delays in diagnosis, gaps in treatment access, and significant strain on families and caregivers. Increased public awareness is essential to improving early identification, expanding clinical resources, and supporting ongoing research into effective therapies.

Each year, May 15th  is recognized nationally as Prader‑Willi Syndrome Awareness Day. This is a time when families, clinicians, researchers, and advocacy organizations work to educate the public and highlight the needs of individuals living with this condition. In addition, this year is especially meaningful because of the official formation of the Prader-Willi Alliance of Pennsylvania. This newly established nonprofit organization is dedicated to supporting individuals with PWS and their families.

With that said, it is with this in mind and more that in the coming days, I will be introducing a Resolution designating May 15, 2026, as Prader‑Willi Syndrome (PWS) Awareness Day in Pennsylvania. The adoption of this Resolution will enable the Commonwealth to join other states across the country in affirming our support for affected children, adults, and families, and in promoting greater understanding of this rare disorder.

To that end, I encourage you to join me in co-sponsoring this important Resolution. If you have any questions, please do not hesitate to contact Takesha Latham at Tlatham@pahouse.net.