The House Resolution introduced by Representatives Scott, Giral, Harkins, and others aims to enhance access to treatments for sickle cell disease, a severe inherited blood disorder that predominantly affects people of color, particularly African Americans. The resolution highlights the significant barriers faced by individuals with sickle cell disease in obtaining quality care, including geographic limitations, financial challenges, and social stigma. It calls for the Department of Health to undertake a comprehensive data collection effort to better understand the disease's impact on patients and communities, as well as to promote affordable interventions such as community education and early diagnosis through newborn screening.
Furthermore, the resolution urges federal policymakers to ensure that individuals with sickle cell disease have access to all necessary medications and treatments, particularly for those eligible for Medicare and Medicaid. It emphasizes the importance of coupling scientific advancements with healthcare delivery policies to guarantee universal access to innovative therapies. The resolution also advocates for collaboration with various stakeholders, including health organizations, to enhance advocacy efforts and improve the overall care and treatment of individuals living with sickle cell disease.