This bill amends the Newborn Child Testing Act of September 9, 1965, specifically enhancing the Newborn Child Screening and Follow-up Program. The amendment adds a new subparagraph to Section 3(a)(1), which mandates that the program include screening tests for Duchenne muscular dystrophy among other diseases. This addition aims to assist healthcare providers in determining necessary treatments or services to prevent intellectual or physical disabilities and potential death in newborns.
The bill emphasizes the importance of early detection and intervention for Duchenne muscular dystrophy, a severe genetic disorder that affects muscle function. By including this condition in the screening program, the legislation seeks to improve health outcomes for affected infants. The act is set to take effect 60 days after its passage.