This bill amends the Newborn Child Testing Act of September 9, 1965, to enhance the Newborn Child Screening and Follow-up Program in Pennsylvania. Specifically, it adds Duchenne muscular dystrophy to the list of diseases for which newborns must be screened. The amendment aims to assist healthcare providers in determining the necessary treatments or services to prevent intellectual or physical disabilities and potential death in affected infants.
The bill requires the Department, with the approval of the Newborn Screening and Follow-up Technical Advisory Board, to implement screening tests and follow-up services for this newly included condition. The act is set to take effect 60 days after its passage.