House Resolution No. [insert number] designates June 23, 2025, as "Dravet Syndrome Awareness Day" in Pennsylvania. Dravet syndrome is a severe genetic form of epilepsy that typically manifests in infants between four to twelve months of age, characterized by temperature-sensitive seizures. These seizures can lead to significant developmental delays, intellectual disabilities, and various other health challenges. The resolution highlights the complexities of diagnosing Dravet syndrome, which often requires expensive genetic testing, and acknowledges the limited treatment options available, including anticonvulsant medications and therapies.

The resolution also emphasizes the importance of raising awareness about Dravet syndrome, which affects approximately 20,000 individuals in the United States, with a notable mortality rate due to complications associated with the condition. It recognizes the Epilepsy Neurogenetics Initiative at the Children's Hospital of Philadelphia as a Dravet Comprehensive Care Center, underscoring the commitment of healthcare professionals in Pennsylvania to support affected families. By designating June 23 as Dravet Syndrome Awareness Day, the resolution aims to honor those impacted by the condition and promote understanding and support for ongoing research and care initiatives.