In the near future, we will be introducing legislation that will extend the sunset provision of the Rare Disease Advisory Council Act to 2028.

The Pennsylvania Rare Disease Advisory Council was established in 2017 to assist those across Pennsylvania who navigate through life with rare diseases. As members of the Rare Disease Caucus, we strive to advocate for policies that directly impact the estimated 1.2 million Pennsylvanians living with rare diseases.
 
We encourage you to join us in co-sponsoring this legislation, so that the Pennsylvania Rare Disease Council may continue the work they do on behalf of vulnerable Pennsylvanians.