The bill establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health, aimed at providing guidance and recommendations to improve the lives of individuals with rare diseases in Oklahoma. The Council will conduct public hearings, consult with experts, and develop policy recommendations to enhance patient access to healthcare and address the needs of rare disease patients and their caregivers. The Council will consist of a diverse group of members appointed by the Governor, including healthcare professionals, patients, and representatives from relevant organizations. It is required to submit an annual report detailing its activities and recommendations to the Legislature and the Governor.

Additionally, the bill amends existing law regarding educational and newborn screening programs to ensure that the list of disorders screened includes at least those specified in the Recommended Uniform Screening Panel. It mandates the State Department of Health to compile and publish an annual report on the disorders screened, including any new additions, and to submit this report to various state leaders and the newly established Council. The bill is set to take effect on July 1, 2025, and includes an emergency clause for immediate implementation upon passage.