The bill establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health, aimed at providing guidance and recommendations to improve the lives of individuals with rare diseases in Oklahoma. The Council will conduct public hearings, consult with experts, and develop policy recommendations to enhance patient access to healthcare and address the needs of rare disease patients and their caregivers. The appointment process for Council members will be transparent, with a diverse representation of stakeholders, including healthcare professionals, patients, and representatives from relevant organizations. The Council is required to submit an annual report detailing its activities and recommendations to the Legislature and the Governor.

Additionally, the bill amends existing law regarding educational and newborn screening programs by modifying the list of disorders screened to at least include those in the Recommended Uniform Screening Panel. It mandates the State Department of Health to compile and publish an annual report on the disorders screened, including any additions since the previous report, and to submit this report to various state leaders and the newly established Council. The bill is set to take effect on July 1, 2025, and includes an emergency clause for immediate implementation upon passage.