The bill establishes the Oklahoma Rare Disease Advisory Council within the State Department of Health, aimed at providing guidance and recommendations to improve the lives of individuals with rare diseases in Oklahoma. The Council will engage in various activities, including conducting public hearings, providing testimony on relevant legislation, consulting with experts, and identifying best practices to enhance patient care and reduce health disparities. The Council will consist of a diverse membership appointed by the Governor, including representatives from health care, research, and patient advocacy sectors, as well as individuals directly affected by rare diseases.

Additionally, the Council is required to submit an annual report detailing its activities and recommendations to the Legislature and the Governor, with the first report due within one year of its establishment. The initial meeting of the Council is mandated to occur by February 1, 2026, and it will meet quarterly thereafter. The bill outlines specific membership terms and procedures for filling vacancies, ensuring a structured approach to governance and continuity within the Council. The effective date for this legislation is set for November 1, 2025.