The resolution designates November 7 of each year as Shwachman Diamond Syndrome Awareness Day in New Jersey to raise awareness about Shwachman-Diamond syndrome (SDS), a rare genetic disorder that primarily affects an individual's bone marrow, pancreas, and skeleton. SDS is inherited in an autosomal recessive manner, meaning that both parents must pass on faulty gene copies for the disorder to manifest. Symptoms typically develop in infants by 4 to 6 months of age and can include bone marrow dysfunction, pancreatic insufficiency, and skeletal abnormalities. Although modern treatments can help manage symptoms, there is currently no cure for SDS, and the condition is often underdiagnosed due to its variable presentation.

By establishing this awareness day, the resolution aims to improve public understanding of SDS, encourage support for affected individuals, and promote research initiatives at various levels to enhance treatment options. The Governor is requested to issue an annual proclamation recognizing this day, calling upon public officials and citizens to engage in appropriate activities and programs to observe it. Overall, the resolution seeks to highlight the challenges faced by those living with SDS and the importance of early diagnosis and multidisciplinary care in improving their quality of life.