This bill mandates the establishment of a central registry for newborns diagnosed with sickle cell trait by the Commissioner of Health. When a newborn screening detects sickle cell trait, the laboratory must inform the responsible physician and document the diagnosis in the central registry. The physician is also required to provide the parents with information about genetic counseling, which will include details about the implications of having sickle cell trait and the potential risks for future children.

Additionally, the bill outlines a system for notifying parents of children listed in the registry about the importance of follow-up consultations with a physician at key developmental stages, such as early and later adolescence. The Department of Health will also make efforts to inform patients who turn 18 about their inclusion in the registry and available resources. The information collected in the registry will be confidential, and unauthorized disclosure will be considered a disorderly persons offense.