This bill mandates the establishment of a central registry for newborns diagnosed with sickle cell trait by the Commissioner of Health. When a newborn screening detects sickle cell trait, the laboratory must inform the responsible physician and document the diagnosis in the central registry. The physician is also required to provide the parents with information about the benefits of genetic counseling, which includes details about the implications of carrying the sickle cell trait for both the parents and any future children.

Additionally, the bill outlines a system for notifying parents of children listed in the registry about the importance of follow-up consultations with a physician, particularly during key developmental stages such as early and later adolescence. The Commissioner will also ensure that patients who reach the age of 18 are informed of their inclusion in the registry and the available resources. The information collected in the registry will be confidential, with strict penalties for unauthorized disclosure. This initiative aims to enhance awareness and support for families affected by sickle cell trait, ultimately improving health outcomes.