The resolution designates May of each year as Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month in New Jersey. EDS encompasses a range of genetic disorders that affect connective tissue, leading to symptoms such as joint instability, fragile skin, chronic pain, and fatigue. With 13 recognized types of EDS, early diagnosis is crucial for effective management, as there is currently no cure. Treatment focuses on symptom management and prevention of complications, often involving physical therapy and support groups. HSD, which also involves joint hypermobility and related symptoms, is recognized as a separate but related condition.
By officially designating May as Awareness Month, the resolution aims to enhance public understanding of EDS and HSD, encourage research into their causes and treatments, and promote activities that support those affected by these disorders. The Governor is requested to issue an annual proclamation to recognize this month, fostering community engagement and awareness initiatives. This initiative aligns with national efforts to raise awareness and improve the quality of life for individuals living with these conditions.