The resolution designates May of each year as Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD) Awareness Month in New Jersey. EDS encompasses a range of genetic disorders that affect connective tissue, leading to symptoms such as joint instability, fragile skin, chronic pain, and fatigue. With 13 recognized types of EDS, early diagnosis is crucial for effective management, as there is currently no cure. Treatment focuses on symptom management through physical therapy and support groups, while ongoing research aims to improve understanding and treatment options for these conditions.
By officially recognizing May as Awareness Month, the resolution seeks to enhance public awareness of EDS and HSD, their impact on individuals, and the importance of continued research. The Governor is requested to issue an annual proclamation to promote activities and programs that support this initiative. This designation aligns with national efforts to raise awareness and foster a better understanding of these heritable connective tissue disorders, ultimately benefiting those affected in New Jersey.