The resolution designates September of each year as Duchenne Muscular Dystrophy (DMD) Awareness Month in New Jersey. DMD is a severe muscular degenerative disease caused by genetic mutations on the X chromosome, primarily affecting male infants at a rate of approximately 1 in 3,500. The disease leads to progressive muscle loss and function, often resulting in paralysis and serious cardiopulmonary complications. With an average life expectancy of just 25 years, early diagnosis and proactive treatment are crucial for improving patient outcomes. While there is currently no cure, advancements in medical research have identified potential treatments, and advocacy efforts are essential for enhancing access to care.
The resolution calls for the Governor to issue an annual proclamation recognizing September as DMD Awareness Month, encouraging state agencies, organizations, and citizens to engage in awareness activities and programs. This initiative aims to raise public awareness about DMD, promote empathy and understanding, and strengthen community support for affected individuals and their families. By designating this month, New Jersey seeks to support ongoing advocacy efforts and highlight the importance of research and improved care for those living with DMD.