The resolution designates September of each year as Duchenne Muscular Dystrophy (DMD) Awareness Month in New Jersey. DMD is a severe muscular degenerative disease caused by genetic mutations on the X chromosome, primarily affecting male infants at a rate of approximately 1 in 3,500. The disease leads to progressive muscle loss and function, often resulting in paralysis and serious cardiopulmonary complications. With symptoms typically appearing between ages two and three, individuals with DMD may require wheelchair assistance by age 10 and a ventilator by age 20, with an average life expectancy of only 25 years. Although there is currently no cure, advancements in medical research and advocacy efforts are crucial for improving care and extending life expectancy.
The resolution calls for the Governor to issue an annual proclamation recognizing September as DMD Awareness Month, encouraging state agencies, organizations, and citizens to engage in awareness activities and programs. This initiative aims to raise public awareness about DMD, promote empathy and understanding, and strengthen community support for affected families. By designating a specific month for awareness, the resolution seeks to enhance advocacy efforts and improve access to treatment, ultimately fostering a supportive environment for individuals living with DMD and their families.