The resolution designates May 7 of each year as Cystinosis Awareness Day in New Jersey to raise public awareness about cystinosis, a rare genetic disorder that affects approximately 2,000 individuals worldwide, including 500 to 600 Americans. Cystinosis leads to the accumulation of cystine crystals in cells, causing severe damage to major organs such as the kidneys and eyes, and can result in life-threatening complications if left untreated. The most severe form, infantile nephropathic cystinosis, accounts for 95% of cases and can lead to complete kidney failure by age 10. Although there is no cure, advancements in treatment have significantly improved survival rates and quality of life for those affected.

By recognizing May 7 as Cystinosis Awareness Day, the resolution aims to enhance education, advocacy, and fundraising efforts related to the disease. The Cystinosis Research Network established this day in 2018 to promote awareness and support for individuals and families impacted by cystinosis. The resolution calls for the Governor to issue an annual proclamation and encourages state agencies, organizations, and citizens to participate in awareness activities, thereby fostering a greater understanding of the condition and improving health outcomes for those living with cystinosis in New Jersey.