The resolution designates May 15 of each year as Tuberous Sclerosis Complex Awareness Day in New Jersey, aiming to raise public awareness about this rare genetic condition that affects multiple organ systems. Tuberous Sclerosis is characterized by irregularities in specific genes that lead to the development of benign tumors in various organs, particularly the brain, heart, kidneys, eyes, and lungs. The condition is associated with significant neurological and psychiatric challenges, including epilepsy, autism, and developmental delays, impacting approximately one million individuals globally, with around 50,000 cases in the United States.
The resolution calls for the Governor to issue an annual proclamation recognizing this day and encourages public officials and citizens to engage in activities that promote awareness and support for those affected by Tuberous Sclerosis. It highlights the importance of organizations dedicated to research and support for families impacted by the condition, emphasizing the need for continued efforts in diagnosis, therapy, and prevention, as there is currently no medical cure. By recognizing May 15 as Tuberous Sclerosis Complex Awareness Day, New Jersey aims to foster a greater understanding of the condition and improve outcomes for individuals living with it.