Joint Resolution No. 9 designates May 15 of each year as Tuberous Sclerosis Complex Awareness Day in New Jersey. Tuberous Sclerosis is a rare genetic disorder that affects multiple organ systems and leads to the development of benign tumors in various parts of the body, including the brain, heart, and kidneys. The condition is associated with significant neuropsychiatric issues, including autism and epilepsy, impacting approximately 50,000 individuals in the United States and one million worldwide. Despite the prevalence of the disorder, there is currently no medical cure, making awareness and support crucial.
The resolution calls for the Governor of New Jersey to issue an annual proclamation recognizing this day and encourages public officials and citizens to engage in activities that promote awareness of Tuberous Sclerosis. By designating May 15 as Tuberous Sclerosis Complex Awareness Day, the state aims to enhance public understanding of the condition and support organizations dedicated to research and family assistance. The resolution takes effect immediately upon approval, which occurred on May 9, 2025.