The resolution designates May 15 of each year as Tuberous Sclerosis Complex Awareness Day in New Jersey. Tuberous Sclerosis is a rare genetic disorder that affects multiple organ systems, leading to the development of benign tumors primarily in the brain, heart, kidneys, eyes, and lungs. The condition is characterized by irregularities in specific protein-encoding genes, resulting in various neurological and psychiatric issues, including epilepsy and autism. With approximately 50,000 individuals affected in the United States and one million worldwide, there is currently no medical cure for Tuberous Sclerosis, making awareness and research crucial for improving diagnosis and treatment.
The resolution calls upon the Governor to issue an annual proclamation recognizing this day and encourages public officials and citizens to observe it with appropriate activities and programs. By raising awareness, the resolution aims to support the Tuberous Sclerosis community and promote research efforts led by organizations such as the TSC Alliance and Tuberous Sclerosis Association, ultimately striving for better patient outcomes and innovative treatment strategies.