Sponsored by:
Senator JOSEPH P. CRYAN
District 20 (Union)
SYNOPSIS
Revises law pertaining to recording patients' demographic information.
CURRENT VERSION OF TEXT
As introduced.
An Act concerning the recording of patients demographic information and amending P.L.2021, c.454.
Be It Enacted by the Senate and General Assembly of the State of New Jersey:
1. Section 1 of P.L.2021, c.454 (C.26:2H-5.36) is amended to read as follows:
1. a. (1) Each general acute care hospital that collects data concerning patient race, ethnicity, sexual orientation, or gender identity for any reason shall implement an evidence-based cultural competency training program for all staff members employed by or working under the supervision of the general acute hospital who have direct contact with patients and are responsible for collecting race and ethnicity, sexual orientation, and gender identity information from patients.
(2) A general acute care hospital that collects data concerning patient race, ethnicity, sexual orientation, or gender identity shall collect the data from the patient in a private manner or a private setting to ensure that the data is not collected publically or openly.
b. Each cultural competency training program implemented pursuant to subsection a. of this section shall include training on how to collect race, ethnicity, sexual orientation, and gender identity in a culturally competent and sensitive manner. This may include the following topics:
(1) common terminology for race and ethnicity, sexual orientation, and gender identity data;
(2) information on the relationship between patient health and collecting race and ethnicity, sexual orientation, and gender identity data;
(3) information on how race and ethnicity, sexual orientation, and gender identity data will be used;
(4) information on how to navigate discomfort in patients and staff when asking patients for their race and ethnicity, sexual orientation, and gender identity information; and
(5) information on how to create an inclusive and affirming environment for all patients.
c. Each staff member who is employed by or working under the supervision of the general acute care hospital, has direct contact with patients, and is responsible for collecting race and ethnicity, sexual orientation, and gender identity information from patients, shall:
(1) complete the cultural competency training program implemented pursuant to subsection a. of this section at such times and intervals as the hospital shall require; and
(2) complete a cultural competency refresher course at least once biennially if completion of the course is deemed necessary by the hospital.
(cf: P.L.2022, c.44, s.1)
2. Section 2 of P.L.2021, c.454 (C.45:9-42.46) is amended to read as follows:
2. a. (1) A clinical laboratory shall electronically record the race, ethnicity, sexual orientation, and gender identity of each patient who presents with a non-electronic order for testing at a clinical laboratory patient service center. If a clinical laboratory processes a specimen without the presence of a patient, the clinical laboratory shall not be responsible for recording and reporting the patient's gender identity, sexual orientation, and racial and ethnic information and may record "not provided" in lieu of the other selections provided under paragraphs (2) through (4) of this subsection.
(2) Race and ethnicity selections shall include: Alaska Native or American Indian, non-Hispanic; Asian, non-Hispanic; Black or African American, non-Hispanic; Hispanic or Latino; Multiracial, non-Hispanic; Native Hawaiian or other Pacific Islander, non-Hispanic; other race, non-Hispanic; White, non-Hispanic; does not wish to disclose; and not provided.
(3) Sexual orientation selections shall include: bisexual; straight; gay or lesbian; something else; does not wish to disclose; and not provided.
(4) Gender identity selections shall include: male, female, gender nonconforming, transgender male-to-female, transgender female-to-male, does not wish to disclose, and not provided.
b. Any healthcare-related data that is required under State law to be reported by a clinical laboratory to the Department of Health shall include any corresponding gender identity, sexual orientation, and racial and ethnic data recorded pursuant to this section, and shall be incorporated into the appropriate disease surveillance reporting system. The Commissioner of Health shall issue guidance concerning the healthcare-related data that is subject to the requirements of this subsection.
c. A non-electronic specimen collection and analysis requisition form distributed by a clinical laboratory shall contain a section for the manual entry of the patient's racial, ethnic, sexual orientation, and gender identity information on the form.
d. Race and ethnicity, sexual orientation, and gender identity information that is required to be recorded or reported pursuant to this section shall be recorded or reported using a program that is compatible with the State's disease surveillance reporting system using such data fields as may be available or necessary in the version of Health Level Seven International recording and reporting standards or equivalent standards adopted by the laboratory, or using any other program or standard as may be designated by the Commissioner of Health that produces superior data collection and related benefits or that is otherwise in accordance with best practice.
e. The Commissioner of Health may modify, by regulation, the race, ethnicity, sexual orientation, and gender identity selections provided in subsection a. of this section as appropriate or pursuant to federal requirements.
f. Any race, ethnicity, sexual orientation, and gender identity data that is collected from a patient pursuant to this section shall be collected from the patient in a private manner or a private setting to ensure that the data is not collected publically or openly.
(cf: P.L.2022, c.44, s.2)
3. This act shall take effect immediately.
STATEMENT
This bill revises the law pertaining to recording patients' demographic information.
This bill amends P.L.2021, c.454 to require patients demographic information to be collected by acute care hospitals and clinical laboratories in a private manner or a private setting to ensure that the data is not collected publically or openly.