Senate Resolution No. [insert number] recognizes June 9, 2026, as Focal Segmental Glomerulosclerosis (FSGS) Day to raise awareness about this serious kidney disease that affects approximately 1 in 7 American adults with chronic kidney disease. FSGS is characterized by scarring in the kidneys, which can lead to kidney failure, requiring dialysis or transplantation for many patients. The resolution highlights the significant burden FSGS places on patients, families, and the healthcare system, including the high costs associated with treatment and the challenges in timely diagnosis due to the rarity of the disease and a shortage of specialized nephrology care.

The resolution also emphasizes the disproportionate impact of FSGS on Black communities, where the disease occurs at a rate 4-5 times higher than in white Americans, largely due to genetic factors. It acknowledges ongoing clinical trials and research aimed at improving treatment options and outcomes for FSGS patients. By designating FSGS Day, the resolution aims to inspire support for those affected by the disease, promote early detection, and encourage the development of innovative therapies to improve the lives of patients living with FSGS.