Senate Resolution No. recognizes October 23, 2025, as PURA Syndrome Awareness Day to raise awareness about PURA syndrome, a rare neurodevelopmental disorder caused by genetic alterations in the Purine-Rich Element Binding Protein A gene. This condition leads to significant developmental delays, intellectual disabilities, and other challenges for affected individuals, many of whom remain non-verbal and face lifelong difficulties. Since its identification in 2014, fewer than 1,000 cases have been diagnosed globally, but increased access to genetic testing is expected to result in more diagnoses.

The resolution highlights the resilience and advocacy of families affected by PURA syndrome, who work tirelessly to provide support, education, and funding for research aimed at improving the quality of life for those impacted. By designating October 23rd as PURA Syndrome Awareness Day, the Senate encourages citizens to learn more about the condition, support affected families, and promote awareness of rare diseases, ultimately fostering inclusive communities that better support individuals with such challenges.