Senate Resolution No. [number] recognizes June 10, 2025, as Focal Segmental Glomerulosclerosis (FSGS) Day to raise awareness about this rare kidney disease that significantly impacts patients and the healthcare system. FSGS is characterized by scarring in the kidneys, leading to potential kidney failure, with about 50% of patients requiring dialysis or a transplant within 5-10 years of diagnosis. The resolution highlights the challenges faced by patients, including delays in diagnosis and the disproportionate burden of the disease on Black communities, where it occurs at a rate 4-5 times higher than in white Americans.

The resolution also emphasizes the financial burden of FSGS on healthcare systems, estimating costs of around $2 billion annually, and acknowledges ongoing efforts by patients, families, advocacy organizations, and researchers to improve awareness, diagnosis, and treatment options. With clinical trials underway and potential new therapies on the horizon, FSGS Day aims to inspire hope and promote the need for better healthcare access and innovative treatments for those affected by this condition.