Senate Resolution No. [insert number] has been introduced by Senators Johnson, Chang, Santana, and Theis to designate May 2025 as Ehlers-Danlos Syndrome (EDS) Awareness Month. EDS is an inherited condition that affects the body's connective tissues, which play a crucial role in supporting various structures such as skin, tendons, ligaments, and organs. The resolution highlights the 13 types of EDS caused by genetic defects in collagen, along with the symptoms associated with the syndrome, including joint hypermobility, pain, and complications like postural orthostatic tachycardia syndrome (POTS). It is estimated that EDS affects at least 1 in 5,000 people globally, and many cases may go undiagnosed.

The resolution emphasizes the significant impact EDS can have on the quality of life for those affected, as there is currently no known treatment or cure. It calls for increased awareness and research funding to improve diagnosis and treatment options, as well as the establishment of support networks for individuals living with EDS. By designating May 2025 as EDS Awareness Month, the Senate aims to honor those suffering from the condition and promote efforts to enhance understanding and support within the healthcare community and the public.