This bill aims to improve the care and management of sickle cell disease (SCD) in Massachusetts by establishing a comprehensive framework that includes support, education, and treatment initiatives. It introduces a new section, 10AA, to Chapter 118E of the General Laws, which mandates health insurers to provide coverage for standard fertility preservation services for individuals diagnosed with medical or genetic conditions that may impair fertility. Additionally, the bill creates a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health, comprising various stakeholders such as medical professionals and community representatives. This committee will focus on developing partnerships, educational materials, and identifying funding sources to enhance care for individuals with SCD.

Moreover, the bill establishes a Sickle Cell Disease Detection and Education Program to promote screening and education, particularly targeting underserved populations. It requires hospitals and healthcare providers to report specific patient information to the Department of Public Health, while also ensuring the confidentiality of patient data. The Department will compile and publish reports based on this data to assess healthcare trends and improve treatment for SCD. Additionally, a central registry for newborns diagnosed with sickle cell trait will be created, and the Division of Medical Assistance is tasked with enhancing healthcare access for individuals with SCD enrolled in Medicaid managed care. By January 1, 2027, the Division must implement a quality strategy for SCD, which includes regular reporting and the development of assessment tools to improve care coordination and outcomes for affected individuals.