This bill seeks to improve the care and treatment of individuals with sickle cell disease (SCD) in Massachusetts by introducing several key provisions. It amends Chapter 118E of the General Laws to mandate coverage for standard fertility preservation services for qualified enrollees at risk of iatrogenic infertility due to medical treatments. The bill also requires the division of medical assistance to apply for a Medicaid waiver to support this coverage and obligates commercial insurance policies to offer similar benefits. Additionally, it establishes a Statewide Steering Committee on Sickle Cell Disease within the Department of Public Health, which will focus on enhancing care coordination, developing educational resources, and securing funding for SCD initiatives. A detection and education program will also be implemented to promote screening and awareness, particularly in underserved communities.

Furthermore, the legislation mandates the creation of a comprehensive data collection system for reporting cases of SCD, requiring hospitals and healthcare providers to submit specific patient information. The Department of Public Health will compile and analyze this data to identify trends and improve healthcare access for SCD patients. The bill also establishes a central registry for individuals diagnosed with sickle cell trait, ensuring that parents receive essential information regarding genetic counseling and follow-up care. Additionally, it directs the Division of Medical Assistance to develop a quality strategy for Medicaid managed care organizations, focusing on care management, genetic counseling, and training for primary care providers, while ensuring accountability through performance measures in contracts with managed care plans.