House Bill No. [insert bill number] amends the membership structure of the Louisiana Sickle Cell Commission by specifying that the executive directors of certain organizations related to sickle cell disease will be appointed as members. The bill repeals previous provisions that allowed for the appointment of members from a list of nominees and instead directly names the executive directors of the Sickle Cell Association of South Louisiana, the Northeast Louisiana Sickle Cell Anemia Technical Resource Foundation, the Sickle Cell Disease Association of America (Northwest Louisiana Chapter), the Sickle Cell Anemia Research Foundation (Alexandria), and Southwest Louisiana Sickle Cell Anemia, Inc. as members of the commission.
Additionally, the bill removes the requirement for the commission's appointment to occur by a specific date and eliminates the stipulation for the commission to hold its first meeting by a set deadline. This change aims to streamline the commission's formation and ensure that it is composed of key leaders in the field of sickle cell disease management and advocacy.
Statutes affected: HB193 Original: 40:1(B)(1)