Senate Resolution No. by Senator Carter urges the Louisiana Department of Health to establish a Sickle Cell Disease Registry, known as the "Skylar-Cooper Database," to improve the health and quality of life for individuals affected by sickle cell disease. The resolution highlights the significant impact of sickle cell disease, particularly among African Americans, and notes the historical delay in addressing this genetic disorder despite its long-standing recognition by national health organizations. It emphasizes the need for accurate patient data to connect individuals with necessary healthcare resources and advocates for the implementation of a structured registry to facilitate this process.

The resolution outlines specific benchmarks for the Louisiana Department of Health to meet, including executing a memorandum of understanding with healthcare providers and sickle cell associations by July 1, 2024, developing administrative rules for the registry by August 1, 2024, and analyzing existing data to ensure its quality by November 1, 2024. The full launch of the Sickle Cell Disease Registry is requested by January 1, 2025. The resolution aims to enhance the state's ability to support individuals with sickle cell disease through improved data collection and resource allocation.