DIGEST
The digest printed below was prepared by House Legislative Services. It constitutes no part of the
legislative instrument. The keyword, one-liner, abstract, and digest do not constitute part of the law
or proof or indicia of legislative intent. [R.S. 1:13(B) and 24:177(E)]
HR 261 Original 2024 Regular Session Phelps
Directs the La. Dept. of Health (LDH) to meet certain benchmarks toward establishing the Sickle
Cell Disease Registry, including fully launching the registry by Dec. 24, 2024.
Requires LDH to submit a report describing the memorandum of understanding or data use
agreement executed by LDH and healthcare providers to facilitate the transfer of information about
patients with sickle cell disease to the House and Senate committees on health and welfare and the
La. Sickle Cell Commission by July 15, 2024.
Requires LDH to submit a report summarizing the content and purpose of administrative rules to
House and Senate committees on health and welfare and the La. Sickle Cell Commission by Aug.
15, 2024.