The House Resolution directs the Louisiana Department of Health (LDH) to establish the Sickle Cell Disease Registry by meeting specific benchmarks, with a full launch scheduled for December 24, 2024. This initiative aims to address the significant impact of sickle cell disease, particularly among African Americans, and to improve healthcare access and quality for affected individuals. The resolution emphasizes the need for collaboration between LDH, healthcare providers, and sickle cell associations to facilitate the transfer of patient information, which is crucial for connecting patients with necessary resources and support.

To ensure progress, the resolution mandates LDH to execute a memorandum of understanding with healthcare providers by July 1, 2024, and to report on this agreement to relevant legislative committees by July 15, 2024. Additionally, LDH is required to develop administrative rules for the registry by August 1, 2024, and to provide a summary of these rules by August 15, 2024. The resolution highlights the urgency of establishing the registry, given recent advancements in treatment options for sickle cell disease, and aims to enhance data collection and analysis to better serve the community.