LEGISLATIVE FISCAL OFFICE
Fiscal Note
Fiscal Note On: SB 239 SLS 24RS 420
Bill Text Version: ENROLLED
Opp. Chamb. Action:
Proposed Amd.:
Sub. Bill For.:
Date: May 28, 2024 6:24 PM Author: MCMATH
Dept./Agy.: Louisiana Department of Health/Office of Public Health
Subject: Amyotrophic lateral sclerosis (ALS) surveillance system Analyst: Garrett Ordner
DISEASE CONTROL EN INCREASE GF EX See Note Page 1 of 1
Provides relative to amyotrophic lateral sclerosis. (gov sig)
Proposed law requires the Louisiana Department of Health (LDH) to establish an amyotrophic lateral sclerosis (ALS)
surveillance system within the Office of Public Health (OPH) to collect, analyze, interpret, and disseminate data relative to
individuals living with ALS in Louisiana. Proposed law provides that in establishing the surveillance system, LDH shall require
reporting sources to report information on ALS to the OPH. Proposed law provides for confidentiality of individual identifying
data in the surveillance system. Proposed law requires LDH to produce an annual report on the results obtained through the
surveillance system to be submitted to the secretary of LDH and the House and Senate committees on health and welfare.
Effective upon governor's signature.
EXPENDITURES 2024-25 2025-26 2026-27 2027-28 2028-29 5 -YEAR TOTAL
State Gen. Fd. INCREASE INCREASE INCREASE INCREASE INCREASE
Agy. Self-Gen. $0 $0 $0 $0 $0 $0
Ded./Other $0 $0 $0 $0 $0 $0
Federal Funds $0 $0 $0 $0 $0 $0
Local Funds $0 $0 $0 $0 $0 $0
Annual Total
REVENUES 2024-25 2025-26 2026-27 2027-28 2028-29 5 -YEAR TOTAL
State Gen. Fd. $0 $0 $0 $0 $0 $0
Agy. Self-Gen. $0 $0 $0 $0 $0 $0
Ded./Other $0 $0 $0 $0 $0 $0
Federal Funds $0 $0 $0 $0 $0 $0
Local Funds $0 $0 $0 $0 $0 $0
Annual Total $0 $0 $0 $0 $0 $0
EXPENDITURE EXPLANATION
Proposed law will result in additional SGF expenditures by the Louisiana Department of Health (LDH) associated with
developing and maintaining an ALS surveillance system.
LDH originally projected costs of $325,596 in FY 25 and $242,692 annually thereafter associated with first-year professional
services costs and ongoing personal services costs to fill two (2) positions to create and manage the surveillance system.
LDH has since revised its estimate, stating that it will utilize existing resources to create and maintain the data system by
combining the ALS surveillance system with the sickle cell disease registry it is currently building pursuant to Act 647 of the
2022 RLS.
Following consultation with the Office of Technology Services (OTS), the LFO expects that LDH will incur costs to add the ALS
surveillance system to its sickle cell disease registry platform, including costs to obtain a server and database as well as
costs for labor to develop and maintain the ALS surveillance system. While these costs are indeterminable, first-year costs
are expected to exceed $100,000.
REVENUE EXPLANATION
There is no anticipated direct material effect on governmental revenues as a result of this measure.
Senate Dual Referral Rules House
x 13.5.1 >= $100,000 Annual Fiscal Cost {S & H} x 6.8(F)(1) >= $100,000 SGF Fiscal Cost {H & S}
13.5.2 >= $500,000 Annual Tax or Fee Patrice Thomas
6.8(G) >= $500,000 Tax or Fee Increase
Change {S & H} or a Net Fee Decrease {S} Deputy Fiscal Officer